How Media Scaremongering Made a Generation of Anti-Vaxxers
In the early 2000s, right-wing tabloids latched onto the suggestion of a link between the MMR vaccine and autism – and stirred up the fear that fuels the anti-vax movement to this day.
‘Get your booster jab to save lives and keep our freedoms this winter’; ‘Jab refuseniks can’t hold UK to ransom’; ‘Florida teen who spent 11 days of ventilator due to COVID-19 urges peers to get vaccinated as cases among kids reach record highs.’
These headlines from the Sun and the MailOnline paint a picture of just how staunchly the mainstream press has rallied behind the UK’s vaccine rollout. With the encouragement of the politicians and the papers, 70 percent of us are now fully vaccinated. Anti-vax sentiment still exists, but our mainstream media—unlike that of the US, where anti-vax splashes crop up (with the tacit approval of some of the Republican Party)—doesn’t give it much credence. More often it clings to the fringes of forums in a parallel internet.
That hasn’t always been the case. A sizable chunk of those who remain unvaccinated became sceptical long before QAnon’s entrance onto the misinformation scene. Twenty years before the Covid-19 pandemic, vaccines were being framed as controversial on a mass scale, with the same papers now telling citizens to roll up their sleeves leading the charge. Sensationalised health reporting in print media, it could be argued, helped birth the anti-vax movement as it is today.
The story started in 1998, when a now-retracted paper was published exploring a link between enterocolitis and autism. In eight of the twelve children examined, this was linked back again to the MMR vaccine. One of its authors, Andrew Wakefield, said at a press conference soon after that giving the triple MMR jab—as opposed to separate jabs for the three diseases—was a ‘moral issue’.
The paper itself concluded no causal connection had been proven, and ten of its thirteen authors rejected this interpretation of their findings in 2004. But the UK press jumped on the story, ignoring the text itself in favour of the incendiary comments made by the renegade Wakefield.
The Headlines
‘I didn’t speak to a single journalist who actually read the paper—not one.’
Justin Lewis is Professor of Communication at the Cardiff School of Journalism. In 2003, along with Tammy Speers, he published a comprehensive review of media coverage of MMR in the period between January and September 2002. Vaccine hesitancy started immediately after the 1998 press conference, and continued well into the 2010s, but in this particular year they found 561 media reports on MMR. 69 percent of these mentioned a potential link between vaccines, autism, and/or bowel disease. Only 37 percent featured the large body of evidence that the vaccine was safe.
‘It was hearsay,’ Lewis tells me over Zoom. ‘One newspaper reported it, so another one did. It was pack journalism at its worst.’
Over half of the media coverage identified came between 28 January and 28 February. Analysis of a few stories published in this period reveals an ‘us vs. the experts’ mentality, along with the politicising and sensationalising of medical matters.
On 2 February, the Mail on Sunday published a story headlined ‘85% want single jabs: public shun controversial MMR triple vaccine as Prime Minister still refuses to come clean’, and quotes a celebrity parent saying she refused to give her son the jab after her daughter reacted badly to it.
Then, on 17 February, the same paper followed up with the headline ‘The government has finally caved in to pressure over MMR and agreed to begin talks with the doctor who first raised concerns about the controversial triple vaccine’. In the article, Wakefield is quoted extensively. ‘You cannot fail to be aware of the unexplained and dramatic increase in autism in countries which administer the MMR vaccine,’ he says.
The sentiment in the Daily Mail was the same. On 6 February 2002, it ran a front-page story headlined ‘New alert on MMR jab’. Three days before, via the MailOnline, it had reported Wakefield’s view that ‘trials of the vaccine were too small and did not follow children up for a long enough period to gauge potential problems,’ under the headline ‘MMR vaccine side-effects ‘not fully tested’’.
Things were much the same at the Sun. On the front page on 5 February, text read ‘THE SUN SAYS: Give us a choice on MMR jab. Our readers’ kids are at risk. Our readers simply have NO choice. Our readers are being treated like second class citizens’. In a double-page spread inside, the paper referred to ‘the great MMR debate’ and spoke of how ‘the arrogant people who run the NHS are refusing Sun readers a vital choice’. It quotes a mother talking about her guilt for letting her son get injected.
The next day, its headlines announced that ‘Mums are ‘winning MMR war’: fear of disease could lead to 3-in-1 u-turn’, and again quoted anecdotes from parents of schoolchildren at length, plus an opinion piece entitled ‘Why my child won’t have jab’. The day after that, headlines included ‘Our son had MMR shot… Then the lights went out’, and ‘I can’t risk it again’. ‘Emily badly needs her jab,’ the author of the second article wrote, ‘but we wouldn’t let her have the triple jab if it was the last thing in the world’.
Changing Minds
The concerns of parents at the time—and their frustration at becoming anxious despite the weight of scientific evidence—have been immortalised on Mumsnet. ‘The more I look into it, the more confused I am’ writes one in a 24 June 2002 post. ‘And I’m annoyed with myself for falling into the media trap.’ ‘Both my [sons] have had the mmr injections but they got them before the media got on the case’, writes another on 25 July 2002. ‘My youngest is now 4 and almost due his booster, my eldest is autistic but not due the injection (IMO), but I am now left facing the scary decision of whether to give no.2 his booster.’
This anxiety translated into a real drop in vaccine uptake, from 92 percent in 1995-6 to 80 percent in 2003-4. It’s possible, some argue, to trace direct links in certain places. This study, for example, looks at the South Wales Evening Post’s ‘fight for facts’ campaign and the subsequent 13.6 percent decline in uptake in its circulation area. In 2012-13, there was a measles epidemic in the area, largely amongst children who had not been vaccinated as infants. Outbreaks also occurred around that time on Merseyside and in Greater Manchester.
Some parents looking back now feel profound regret. For others, the scepticism has proved hard to shake—with Covid-19 forcing difficult but necessary decisions.
AB, as they wish to be known, is the child of one such parent. They tell me: ‘[My mum] had heard about the outcry and MMR jabs being potentially tied to autism at the time, by which point I had already had two jabs. She didn’t want me to develop autism, so I didn’t get my last MMR vaccine.
‘To my knowledge she’s only changed her mind recently,’ they continue. ‘It wasn’t until I was older and me, her, and my stepdad—who has a science background—had a discussion about how the study had been disproven. She’s fully vaccinated and boosted against Covid-19 now, thankfully.’
There are also parents who have become more entrenched in anti-vaccine opinions and communities, or to this day maintain that the MMR jab gave their children autism.
After MMR
Putting aside for a moment the implication that the risk of death is preferable to the risk of developing autism, the coverage might have been comprehensible, particularly given the recent loss of public health confidence over the response to BSE, if the MMR evidence was split. But it wasn’t.
‘Even in quite responsible news outlets, a little like the coverage of climate change at the time, there was this idea that if there was dissenting view, in order to be balanced in your coverage, you give that about the same amount of coverage as 99.9 percent of scientists,’ Lewis says. ‘In this particular case, the way the balance would happen—which was unfortunate—was that you would get a lot of quite dry scientists giving you data. And then you’d get a very sympathetic young, married couple saying something like, “Well, our son was fine until he had the MMR and then he developed this.” That seemed so much more compelling and so much more human.’
The 99-1 percent evidence split suggests a complex agenda, and points to deeper problems with how the press covers science, and sensationalism’s influence on the development of the ‘truth’. More insidious was the political agenda of some of the most sceptical papers. Tony Blair’s refusal to say whether his son Leo had had his vaccination was a particularly hot moment in what was overall a convenient tale of a maverick standing up to the nanny state: many of the culprit papers, says Lewis, are ‘actually ideologically driven outlets. We give them way too much credit for being journalistic outlets.’
This was not the rule across the board. The BBC, for example, played a part in spreading misinformation by dint of its ‘balance of views’ principle, while other right-wing tabloids like the News of the World were vocal in their support for jabs. But the problem was pronounced across right-wing lines: the Sun and Mail were serious culprits, alongside the Telegraph and the Daily Express.
This balance goes some way in clarifying the change in tune over Covid jabs. ‘Given this was a right-wing government introducing [the Covid jabs], and absolutely putting faith in them, there was less space to develop that discourse,’ Lewis says. He adds: ‘[The papers] realised it was their only way out of lockdown, which they hated.’
Admitting wrongdoing, as the Mail did in 2019 when it launched a pro-MMR campaign, is not easy, and must be welcomed. But it’s not yet clear that the attitude that overegged one dodgy study and threw public health off kilter for years to come has fully dissipated. These problems are ultimately far bigger than one story—and remain in spirit today.